MEET A PATIENT PARTNER

Jim Uhrig
Jim’s Story: Jim participates on the PaTH Steering Committee and is a Patient Partner with the Idiopathic Pulmonary Fibrosis cohort. He was diagnosed with IPF in 2008 and received a double lung transplant in 2009. Jim’s memoir Partners 4 Life tells the story of his journey with IPF. He also maintains a Partners 4 Life blog and has appeared on CBS-affiliated programs, Doctor Radio, and the Discovery Channel special Every Breath Counts. Jim owns a business making custom picture frames and says he is passionate about relating IPF and donor awareness to his customers. In April, Jim attended the 8th Annual Health Datapalooza in Washington, D.C. where he gave a presentation on the importance of patients’ engagement and perspectives when developing a health data network. Jim says the presentation went well, and he enjoyed attending other sessions about the future of health care.

What is a patient or community partner?
Patient Partners work with our research teams to shape meaningful research questions and develop ways to let patients and other stakeholders learn about findings that may matter to them.

WHAT DO YOU THINK?

PARTICIPATE IN A PATH STUDY

You can help researchers improve health care delivery and make a positive difference in the lives of patients by participating in a PaTH study. Learn about studies that may be in need of participants below.


SHARE YOUR STORY WITH THE MYPATH STORY BOOTH

We Want to Hear From You!

We rely on input from community partners to understand patient and caregiver needs. Stop by the MyPaTH Story Booth for a quiet and comfortable space where you can audio-record your story about health, illness, or your experience with the health care system. We can’t wait to hear from you!

Listen to selected Story Booth stories

SUGGEST A QUESTION

Do you have questions you'd like to see on the PaTH Crowdsourcing Tool? Click below to get in touch with a PaTH representative.

STORY BOOTH

Schedule an appointment to share your story through the MyPath Story Booth by clicking below or e-mail us at mystory@pitt.edu.

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